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What’s New at the Zoo?

Gracie is a hearty 20 lbs.  Boy am I thankful.  We are right on target!  Physical therapy and occupational therapy are going well at the house and at Rady’s.  Grace has started doing a crawl or two when she is really motivated.  Piano sheet music and books are what really get her moving(I wonder if we have some foreshadowing going on).  It usually ends up turning into a crawl/roll/sit deal, but she can finally move it, move it so we are counting our blessings!

Gracie got a baby walker for her birthday and she has finally learned to move other directions besides backward.  She has managed to make herself extremely mobile and since her arms are so long she is in ALL of my cupboards.  She has since broken a huge heavy platter.  I even founder her in my stash of Chick-Fil-A sauce gnawing on one of the little tubs that she found…what have I done?  Good thing she’s cute:)

Occupational therapy has a goal for her to close her mouth and have the tongue thrusting stop, but I don’t see that happening anytime soon.  The raspberries she blows do continue to melt me though.

We have an ultrasound of her kidneys coming up that will hopefully come back clean.  I’m most worried about this test since over half of kids with a 10p15 deletion have kidney failure or need transplants.  Fingers are crossed.

We took Gracie in to get her hearing tested.  She passed 2 of the 3 tests.  We are going back March 2nd for her to get a sedated brainstem response.  I have my fingers crossed that things go smoothly.  We put her to bed at 11pm the night before and wake her up at 3am and have to keep her awake until the test at 7:30.  She isn’t allowed to eat or drink anything during this time period.  I feel so bad for the little bug.  My laugh/gauf over the phone when they told me about the test quickly turned into a wince/oh you were serious?!…response.  Gracie is a trooper…I’m sure it will all be great!

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2 Responses to “What’s New at the Zoo?”

  1. Emily says:

    Congrats Gracie. You’re in the big time now!

  2. Hila says:

    She’s a trooper and so is her mom! You are an inspiration!